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lifelong learning Programme

End-user Seminar Helene Elsass Center, Denmark

At November 7th Helene Elsass Center carried out a seminar for end-users. The participants were students from University College Metropol, studying to become teachers specialized in the field of special education. 21 stude...


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4th International Cerebral Palsy Conference, Pisa, Italy, 10-13 October 2012

4th International Cerebral Palsy Conference, Pisa, Italy, 10-13 October 2012 The 4th International Cerebral Palsy Conference is taking place in Pisa, Italy, just these days. CP-pack partners from Denmark (Mette Kliim-Du...


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World Cerebral Palsy Day

World Cerebral Palsy Day, on 4 September 2012, is a world first! It will change the lives of people with cerebral palsy (CP). The theme for this unique day is 'Change my world in 1 minute'. There are 17 million people arou...


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24th EACD (European Academy of Childhood Disability)

24th EACD(European Academy of Childhood Disability) Annual Meeting with the joint of 14th National Turkish Child Neurology Society was held in Istanbul, Turkey from 16-19 May 2012. It was organised by Turkish Child Neu...


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Enlarging the pedagogic practices in special and mainstream schools

“Enlarging the pedagogic practices in special and mainstream schools” On June 20th, 2012, Cerebral Palsy Greece carried out a meeting with stakeholders, in the frame of CP-PACK Dissemination Plan. The title of the meeting ...


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CP-PACK
The project titled "DEVELOPMENT OF SUPPORTIVE PACKAGES FOR PARENTS AND TEACHERS OF CHILDREN WITH CEREBRAL PALSY (03-18 AGE GROUP)" is financed by the Lifelong Learning Programme (Grundtvig Multilateral Project) of the European Commision.

CEREBRAL PALSY

Cerebral palsy (CP) describes a group of permanent disorders of the development of movement and posture, causing activity limitation, that are attributed to non-progressive disturbances that occurred in the developing fetal or infant brain. The motor disorders of CP are often accompanied by disturbances of sensation, perception, cognition, communication, behaviour, by epilepsy and by secondary musculoskeletal problems. (Rosenbaum, Peter et. Al. 2006 )
BACKGROUND

The prevalence of CP shows a variable rate, ranging from 1,5 to 3 per 1000 live births. Every year 10.000 children in the European Union are diagnosed with CP.
The ginger group, from Projects Coordination Team in Ankara Provincial Directorate for National Education, Turkey, behind the present project wished to investigate how parents and teachers of children with CP coped with this task. An internet search was carried on and the related research and literature were investigated. Meanwhile, discussion groups and face-to-face interviews were carried out as a preparation for the project. 20 teachers working at schools with CP pupils participated in the discussion groups once a week for 6 weeks. In addition, face to face interviews were conducted with 5 teachers and 15 parents at a school which mainly has pupils with Cerebral Palsy. According to these; it showed that parents as well as teachers lacked knowledge and competencies to assist the children at home and at school. Besides, they lacked information on services and possibilities of assistance. Parents also expressed the need to share their feelings, hopes and fears for their children as well as the need for leisure time and privacy.
Furthermore, research illustrates that the Quality of Life (QoL) of children with CP in terms of participation, social, attitudinal and physical environments is poor and parental stress index is often high. It should be stressed, however, that the factor QoL is primarily contingent on the environment in which a CP child is raised and thereby involves access to services and resources at local and national level. Therefore, QoL is also directly linked to national and social infrastructure, which differs from country to country. In some EU countries, this infrastructure requires further development in order to support the CP population more adequately and effectively.

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